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Sunshine's Miracle

 


Hi!

My Mommy calls me Sunshine!  She says I light up the world when I smile!

 Mommy says I'm a beautiful! I am four years old. I am a girl. I was diagnosed with spina bifida before I was born. That means my spine was open and it wasn't supposed to be. Daddy found some wonderful doctors who repaired that before I was born.  I have 2 birthdays, sorta.  One when I was taken out of my mother so Dr Noel B. Tulipan, M.D. could close my back and another when I was born to stay.   I also have neurogenic bladder. I was 4 months when the doctors gave me a vp shunt for hydrocephalus. It was revised when I was 6 months old. Those are the only surgeries I have had for that. I have had my tonsils and adenoids removed. I have had only four surgeries total! That is very good!   I have some language/cognitive delays, but that is not because of the spina bifida or shunt, but because of the conditions I was in before I joined my new family. I had surgery before I was born and I am a MIRACLE! I can walk, run and climb! I love my family! I love to sing Praises to God when I play or ride in the car. I am very happy!

My family

August 1, 2010

Pauley Perette aked everyone to dance at 3 o'clock Here's Sunshine's dance for her favorite actress. http://bit.ly/9naX8q

 

 

July 6, 2010

Hey everyone! Time to update my web page!

I have been very busy! I go to regular school and I make good grades.But I am glad it's summer time now.

I go to church. It's fun. I love Kids For Truth.

I love drawing and painting. Mom says I am very good. I can be an artist when I grow up, if I want.

I love to watch Doctor Who and NCIS. I am very good with remembering who plays what character on tv shows.

I love to play with my friends outside but I don't get to much in the summer because I can't regulate my body tempature like most kids. But that just means I am very good at Wii Sports Resort Sword Play Speed Slice.

 

 

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January 2008

Sunshine spent 3 days in a hospital in Topeka, Ks. We were in Topeka because PB & Kitty were accepted as student ambasators to Ireland England and Wales when Sunshine got very sick. We took her to the ER because we were afraid her shunt was failing. Thank God it wasn't. She had a UTI and was dehydrated. It came over very quickly.  Anyway, we were not prepared to stay in Topeka but a few hours.  Kenny (or me when he was with Sunshine) and the three other girls stayed at the Ronald McDonald House there. They are wonderful! If you ever get a chance to donate, please do.

 July 2, 2008

Sunshine had surgery at Children's Mercy in Kansas City, Missouri. The surgery was to enlarge her bladder and may a place for her to cath herself at her belly button. This will give her more independence and greatly improve her quality of life. Everyone at the hospital was great. She is now home and doing well.


 Update, Dec 2009

Sunshine has had a very healthy year. Praise God! 

She had a great growth spirt last summer. Only downside to that was she outgrew her braces very quick. We waited till summer was over to make sure her growth spirt had slowed down. She gets her new braces this month.

She can do her school work, but generally doesn't. When she was tested at Children's Mercy they told us that since children with spina bifida are living longer and are in mainstream classes more they are seeing a direct physical correlation between where their back was open and what part of the brain is effected with ADD. We [family and teachers] have worked a long time with her but we think it may be time to try medication. Not something we want to do, but nothing else has worked.  

Right now Flat Stanley from Georgia is visiting.  Picture on Photo Page 2.

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"If God gives you a Special Needs Child, you are blessed indeed!"

Mommy


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